With the number of recognised rare disorders at more than 8000 and rising, their combined prevalence makes them uncommonly common. In people with these disorders, supportive, long-term, consistent and accessible contact with primary care is central and essential. This article provides a heuristic framework for the care and management of a person with a rare disorder and their whānau
Wednesday 27 October 2021, 12:45 AM
Thanks Jim. Loved it. You forgot the most important therapy though: when the patient is really, really sick you can extend their life-line with your Biro and add years to their life.
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